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Tuesday, August 17th

A History of the Rochester Celiac Support Group
Karen Meyers, Marlene Kier and Carol Becker

 


Notes from June 2010 Cooking Class

Sample Spreadsheet for Medical Savings Account Claims for Gluten-Free Food

NYT Article on Cost of Celiac Disease

GlutenWatchers.com - New Celiac Web Site

CDF Info on tax deductions for GF diet

Scientific American Article on CD

 

What is Celiac Disease?

Celiac disease (CD) is an autoimmune disease. A protein found in wheat, rye and barley causes the body's immune system to attack the lining of the small intestine.

What are the Symptoms?

Celiac Disease presents itself in many ways. Symptoms include but are not limited to:

  • Diarrhea or constipation
  • Weight loss
  • Abdominal pain
  • Vomiting
  • Bloating and distension
  • Anorexia
  • Anemia
  • Skin rash (dermatitis herpetiformis)
  • Short stature
  • Delayed puberty
  • Infertility
  • Miscarriages
  • Osteoporosis
  • Vitamin deficiencies
  • Fatigue
  • Depression and anxiety
How common is it?

1 in 133 Americans according to a recent study by the Center for Celiac Research at the University of Maryland. That amounts to nearly 3-million people in the United States, most of whom are undiagnosed.

How is it diagnosed?

Good blood tests are now available including IgA antihuman tissue transglutaminase (TTG) and IgA endomysial antibody immunofluorescence (EMA). The NIH Consensus Conference on Celiac Disease recommended serologic testing as the first step in diagnosis with biopsy of the small intestine indicated if the blood tests are positive. Testing must be done while the patient is on a gluten-containing diet.

97% of people with celiac disease have the genetic markers HLA DQ2 and/or DQ8 compared to 40% of the general population who have these markers so an individual without these markers is unlikely to have celiac disease.

How is it treated?

Life-long adherence to a gluten-free diet.


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